In January 2019 I was diagnosed with Acute Myloid Leukaemia (AML) and admitted straight to ward 33 at the Freeman. I had been feeling unwell for 6/7 weeks before I was eventually diagnosed.
My symptoms included severe mouth ulcers, leg pains and tiredness. I started my first round of intensive chemotherapy two days after diagnosis. I can’t deny that in the beginning I was terrified, and the first month was definitely challenging as I suffered various complications which lead to a stay in ICU. I was placed in an induced coma and ventilated due to respiratory failure. I had acute kidney damage, retinal bleeds due to low platelets which affected my vision, and I had to learn to walk again after being bed bound in ICU.
But after five weeks in hospital I was told the treatment had worked and I was in remission. The Haematology team at the Freeman not only saved my life but supported and comforted me and my family throughout the whole of my treatment. The staff on ward 33 really were incredible and kept us all going. I was admitted for a further two rounds of chemotherapy with a lot less side effects and in April was advised I needed no further treatment.
I continue to have regular blood tests and check ups with the consultant, and have always had the support of a nurse specialist at the end of the telephone if I have any concerns. I was fortunate to have family and friends by my side but there are so many support networks available. Between the NHS staff, Bright Red and fellow patients, there is always someone to talk to about what you are going through.
A friend of mine who had battled cancer herself a few years prior, told me that one day you’ll get to the point where you don’t even think about cancer. In the midst of treatment when your life is consumed by chemotherapy and side effects and hospital appointments it’s hard to imagine. But she was right. As I celebrate five years in remission sometimes it feels like it was all a bad dream.
Looking back now I can focus on all the positive ways it has changed my life. The strengthened relationships, the realisation of what is important and what isn’t worth worrying about, and the amazing people I met along the way.